Happy Halloween
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Charlie Sniffers
Snow White
Sleeping Beauty
Cowboy Matt
Jumping on the trampoline
still best friends...most days
Yummy Eating at Nana's and Papa's
Didn't quite make it to bed
Bottom of the stairs
'stand back Sis' I'll handle things from now on
Cleaning Tips
- scratched CDs and DVDs. Soft 100% cotton cloth and PlastX by Meguiars.
- Baby poop stains. Use liquid Biz in your wash.
- Dirty Grout. Try CLR and a green scrubby
- White film on drinking glasses. Use 1/4 cup of Oxiclean in your dishwasher
Favorite Peoples
Day 4
Something that doesn't happen at home..drinking a bottle!
Day 3
Matt is about to have his airways suctioned
Day 3
breathing tube out! Color in his cheeks!
Day 2
Oct. 30 Surgery is on!
Dr. Kouretas called just now to let us know that the surgery will be taking place Thursday, November 1st. They are not completely sure what will be taken place in the surgery until tomorrow morning after their cardilogy meeting. So updates will be posted tomorrow after 11am.
Oct 26th No news
Is no news really good news? I have left a message with cardiology to see if they have come to a collective decision and have not heard back from them.
Oct. 24th The Delay
Matt's surgery has been cancelled due to indecisive surgerns and doctors. On the way to the hospital today to do pre-op, the surgen, Dr. Kouretas called and asked that I meet with him. At the meeting he said that they would like to stent Matt's pulmonary artery on the left side that is narrowing down too about 1-2 mm (the size of spaghetti) and hold off on the surgery till after the stent is put in. (about 6-8 weeks). Originally, we were told by Dr. Day (cardiologist) that they would patch that area or use a conduit and go around that area. Dr. Kouretas said that the area to the pulomanary artery is covered in scar tissue (due to the previous surgerys) and in a hard to reach place right next to the lung. It would be too difficult to patch in surgery and that is why the stent is necessary. So when I left the meeting I was told to expect a call from the cath lab in the next day or two to set the appointment for the stent.
On the way out of the hospital I stopped in and left a message with Dr. Day to get his view point on postponing the surgery.
A call, a couple of hours later, from Dr. Day left us further frustrated. The Cardiologist team consist of all cardiologists and the two heart surgens. All of them met earlier this morning to discuss Matt's surgery tomarrow and the goals except Dr. Kouretas. Dr. Kouretas was unable to make it due to him being ill. He came in later in the day. The Cardiologist team decided, without Dr. Kouretas, that the surgery should take place tomarrow, as planned. The narrowed pulmonary artery would be expanded via patch either in an insion through the back of Matt's chest or later in the cath lab with a stent. Dr. Day did not know that Dr. Kouretas had cancelled the surgery until my note. Frustrating that they can't seem to get a clear plan.
To further complicate the matter, the stent doctors do not want to do a stent. Matt is too small and the largest stent that can be safely put in is 4mm....too small to do a great deal of good. SOOOOOO Dr. Day said that he would hopefully get all parties together and re-hash out the game plan...next Wed at the latest. Until then, we are sitting tight. They could call us anytime and say "come in we are doing all three things in surgery tomarrow" or we can be waiting till the cath doctors or surgens make up their minds.
Matt will need a blood transfusion due to a low red blood cell count in the next week.
On the way out of the hospital I stopped in and left a message with Dr. Day to get his view point on postponing the surgery.
A call, a couple of hours later, from Dr. Day left us further frustrated. The Cardiologist team consist of all cardiologists and the two heart surgens. All of them met earlier this morning to discuss Matt's surgery tomarrow and the goals except Dr. Kouretas. Dr. Kouretas was unable to make it due to him being ill. He came in later in the day. The Cardiologist team decided, without Dr. Kouretas, that the surgery should take place tomarrow, as planned. The narrowed pulmonary artery would be expanded via patch either in an insion through the back of Matt's chest or later in the cath lab with a stent. Dr. Day did not know that Dr. Kouretas had cancelled the surgery until my note. Frustrating that they can't seem to get a clear plan.
To further complicate the matter, the stent doctors do not want to do a stent. Matt is too small and the largest stent that can be safely put in is 4mm....too small to do a great deal of good. SOOOOOO Dr. Day said that he would hopefully get all parties together and re-hash out the game plan...next Wed at the latest. Until then, we are sitting tight. They could call us anytime and say "come in we are doing all three things in surgery tomarrow" or we can be waiting till the cath doctors or surgens make up their minds.
Matt will need a blood transfusion due to a low red blood cell count in the next week.
October Post Cath-Lab
Matt's surgery is needed to accomplish three goals. The first: to give adaquet blood flow to the left lung. Currently, the pulmonary artery narrows to about 1-2mm right before the branches go into the lung.
The second: to close the large hole (VSD) in his heart between the right and left sides. The blood is being pumped through his body without going through the lungs to oxygnated the blood. The third: to place a pulmonary valve in between the heart and the pulmonary arteries so that back flow from the lungs will be minimized.
Currently, Matt's oxygen saturation is in the low 70s.
The second: to close the large hole (VSD) in his heart between the right and left sides. The blood is being pumped through his body without going through the lungs to oxygnated the blood. The third: to place a pulmonary valve in between the heart and the pulmonary arteries so that back flow from the lungs will be minimized.
Currently, Matt's oxygen saturation is in the low 70s.
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